Jake had a great party

Today we had Jake’s birthday party; he turns 6 years old on 6/10. Of course I picked the hottest weekend thus far in the season to have the party.

All together there were about 40 people and everyone had fun despite the hot weather. Those kids who can run around had a blast playing water games in the newly fenced yard, although one still got away somehow and his mom found him a block away. That was the single scariest moment of the day. We also tried to organize a few group games, but I think my best idea of the day was that all the kids drew/scribbled/wrote something on a big poster that I bought. I took pictures of everyone who came to the party so later I am going to print out the photos and glue them onto the poster. Jake can have all year to “review” everyone who came to celebrate his 6^th birthday with him.

As I looked around my house which were filled with our friends and their children, some typical and some special needs, I am most grateful that we have these friends. I know that they care about us and they care about Jake. I know they know that it has not been an easy journey for us; some of them know really really well because their journeys have been just as difficult if not more. Look at this beautifully handmade card. (Thank you Jenny!)

We want to thank all of our friends who came to celebrate Jake’s birthday with us; we thank you for your gifts and we thank you for your love.

will be getting the disabled parking permit

Today Jake had an appointment to reassess his eligibility for the disabled NYC parking permit. Question: What would I give if in exchange he can be “abled” enough that he becomes ineligible for any services that are disabling related? Answer: I would give my everything.

Anyways, the appointment was at 1pm, we got there at 10 minutes before noon, and we were the third in line. (It is a government appointment; you can never get there too early).

Slowly the waiting room started to pile up after we arrived and I looked around, there were men and women of all colors and sizes, however, Jake was the only child there. It was a sad moment for me I am not going to deny it, but somehow I got myself together and didn’t dwell on my sadness too much. It did help that everyone there were very nice, I didn’t even feel an ounce of pity from anyone’s eyes when they looked at Jake. Perhaps, they felt that he was one of them. I mean after all, we were all there trying to renew the parking permit.

The doctor who was assigned to review Jake’s case was also very nice; he asked a few things about Jake and told me that we should expect the permit in the mail shortly. I am glad that this appointment is out of the way.

This weekend we are having a birthday party for Jake. He will turn 6 years old next week. I will post pictures of the party in my next entry.