Monday, August 31, 2009

Jake and Max update

Jake is into the 3rd and final week of no school. During this time period, I wasn’t able to spend that much time with him because of the baby, but luckily, Melanie, his lone time respite carer comes in everyday and dedicates every minute of her working hours to his one on one care. Prior to the start of vacation, I made up an activity list and a daily schedule sheet for Melanie and Jake. Everyday, Melanie picks from the list which includes various PT, OT, and computer learning activities; she logs them on the daily schedule sheet as Jake does them. This is so that Jake’s days can be structured and he gets a chance to review all the activities/basic concepts.


Last week was an eventful week for Max, as he was hospitalized for 3 days. We found him with a 101.5 fever on Sunday morning, and off to the ER we went. We ended in the ER for 10 hours as they needed to collect urine, blood, spinal fluid from him in order to grow cultures to check for any bacteria infections. They also needed to put in an IV to administer antibiotics in case he did have bacteria infections. We were told that is the protocol for any infants who have fever above 100.4. After 10 hours in the ER, we were admitted to the floor, there he was getting antibiotics every 6 hours as he was being treated as if he had infection until the 48 hour culture report indicates otherwise. Luckily after 48 hours, none of the cultures showed anything, and we were discharged at around 8pm on Tuesday evening. It was so hard seeing him being stuck so many times by no less than 10 doctors/nurses/residents in the ER all trying to get the specimens and place the IV. I mean it was horrible, why can’t they just send in the best person in the first place rather than have 10 people try and try and fail. In the end, it was the attending ER physician who placed the IV and got the spinal tab, but that wasn’t done until 5 nurses, 1 fellow, 1 resident tried and failed. It was another doctor of NICU who finally drew blood from him after god knows how many people before her tried and failed. Anyhow, finally on Thursday, Max was fever free and since coming home, I have been limiting direct contact between him and Jake, and also having no visitors to see him since we still don’t how he got sick in the first place. That is for now, here is a picture of Max in the ER, poor baby, and another one after a bath.

Wednesday, August 12, 2009

Jake's baby brother is home

Jake’s baby brother Maxim Kai Li was born on 8/6/09, at 8:38am, birth weight was 9lbs 2.6ozs, and he was 20 ½ inches long.

As soon as I got a good look at Max, I thought right away that he looked a lot like Jake when Jake was a baby. Take a look at their pictures side by side:




Max is a really good baby so far, he eats and sleeps and rarely fusses. Jake still has school this week, so Max and I have been spending some alone time during the day. I also find nursing Max at night is very relaxing for me because for some reason, when Jake is at home, I feel a little guilty if I am not able to pay as much attention to him as I used to. I know Jake doesn’t mind it since someone is always with him to keep him occupied and safe, so it is just me. But when Jake is in school and in the middle of the night, I feel that guilt subside and I can fully enjoy my time with Max. I am not sure how long I will feel this way and I don’t know if it is healthy to feel this way, but right now it is what it is. Here are some pictures of Max.


Sunday, August 02, 2009

Jake, baby, and lily

Jake has been riding his tricycle every weekend, and going swimming at the YMCA once a week as well. Jake is doing well in both, making little but steady improvements. I wish I have photos to post but I haven’t taken any lately. There are 2 weeks of summer school left, and I am picking my brain to find activities to keep him busy while he vacations at home.

The other big news is my scheduled c-section is coming up in 3 days, August 6th is the day that Jake will finally have a baby brother, whose name is yet to be decided.

Wish us luck!

I planted some lilies back in May in the front of our house, and they are blooming so beautifully.