TGIF

Good news to update, I think Jake’s leg is finally getting better. This morning, he was able to walk while pushing his stroller again. He was not limping, well maybe still a little bit, but he was bearing weight much better.

Just as his development seems to improve, he always has some kind of set back. This journey is really a true testament of patience, perseverance, and faith. The picture on the left was taken in Nov. 2005, notice Jake needed a brace all the way up to his waist to maintain an upright position. The picture on the right was taken in Oct 2006, notice how nicely he was standing without any brace. You just have no idea how much work, sweat and tears it took for this little guy to go from left to right! We are very proud of him.

Next week I will attend a Parent Information Meeting for “CPSE Turning Five”. Basically it will be a meeting to inform parents about the transition process from CPSE to Kindergarten for youngsters with special needs. We are not sure which school will best fit Jake’s needs after he turns five years old. Currently, we are considering NUCP (Nassau United Cerebral Palsy). But in order to attend this school, we would need to move to Nassau Long Island. We are currently house hunting in that area, but it is difficult to find a house within our budget that meets Jake’s needs. We need something that doesn’t have too many stairs inside and out; doorways need to be wider in case he needs a wheelchair for indoor use; bathroom needs to be bigger, etc. Isn’t that TV show “Extreme Home Make Over” awesome? Do you think they can build us a house when we don’t have a house? :-)

I ordered a pair of shoes for Jake from Hatchback Co. They sell a type of specialized shoes to wear with AFOs (Ankle Foot Orthodics). I read many good customer feedbacks and decided to buy a pair for Jake. He has worked harder than anyone I know this whole year, and he totally deserves a pair of good shoes that is not 2 sizes larger then his actual size just to fit his AFOs.