Wednesday, October 04, 2006

Let's see...................

Let' s me just do an inventory of a list of things, because the list is getting so long I can't even keep track of them myself:
  • Number of specialists Jake have seen in the past 4 years:
  • Pediatrician - 3
  • Neurologist - 5
  • Orthopedics - 4
  • Genetics - 1
  • Audiologist - 1
  • ENT - 1
  • Dentist - 4
  • Osteopathic doctor - 2
  • Allergy/Immunologist – 1
  • Ophthalmologist – 2
  • Number of hospitalizations -4 (I think)
  • Types of therapies Jake has done or continues to receive :
  • Physical Therapy
  • Occupational Therapy
  • Speech Therapy
  • Aquatic Therapy
  • Hippotherapy
  • Intensive Suit Therapy
  • Conductive Education
  • Therapeutic Listening therapy
  • Osteopathic Manipulation
  • Sensory Integration and Learning
*** OK, I am not going to list the number of therapists who have worked with Jake, let's just say the saying "It takes a village to raise a child" really applies here!
  • Types of adaptive equipment Jake uses for various activities:
  • AFO - Ankle Foot Orthotics
  • Walker
  • Stander
  • Tripod Canes
  • Augmentative Communication Device
  • Special Needs Car seat
  • Special Needs Stroller

Looking over the list, it seems so sad that our sweet child needs all of these devices and therapies and specialists, but again, I remind myself to look at the positives, and find inspirations.

In the past four years while there have been so many challenges and heartaches, we have also met some of the kindest and loving people. While almost daily, I see hatred and evil on the evening news, but through the innocence of Jake, I been able to see, and experience the goodness, and kindness of so many people. For that, I am very grateful.

Check out some of the stuff we have at home:



1 comment:

Anonymous said...

Hi,

I just happened to come across your blog about Jake and I think he's an amazing little guy. Like, you I have a 4 year old little boy who they said had a Dandy Walker Varient when he was a baby. I've been all over looking for answers. Finally, a NS in Phoenix looked at his MRI's and told us that it wasn't Dandy Walker it was a brain stroke.
It's been so hard on us too. My son is Noah and my husband is "Jake". Together we have made it work. It's been a long tough road and like you I wish I could drink to forget sometimes.
I just wanted to wish you the best. If ever you want to chat email me at Secretlnk1968@aol my name is Candi.
Nice to meet Jake and you.

Candi